I was diagnosed with Crohn's disease around 1985,
so I've had a lot of experience with it. Except for a year of
remission due to Remicade infusions (which ultimately became
ineffective for me), I've lived from Crohn's disease flare-up to
Crohn's disease flare-up, and it hasn't been much fun. Toss in an
ileostomy in 1992 when I was thirty, and it's been a regular Mardi Gras.
40+ reviews of The First Year: Crohn's Disease and Ulcerative Colitis: An Essential Guide for the Newly Diagnosed
My treatment consists of Azathioprine & Prednisone, a steroid.
When I have a flare-up or detect one coming on, I take 40mg of the Prednisone
daily; once the flare-up is over, I reduce my Prednisone by 5mg every
three days until I get down to what I call my "running count" of 20mg.
Sometimes, when I have been doing well on 20mg, my doctor encourages me to
reduce my Prednisone below 20mg; this always leads to another flare-up.
Puzzled by these flare-ups that have kept me down, recently I
decided to keep a closer eye on what I am eating, to discover if my diet might
be the problem. I found three possible culprits:
It's tough to cut these out of one's diet, especially milk,
because you might be surprised what food items contain milk; for instance,
I found that my Kroger-brand roasted peanuts, which I love, "may contain milk."
Rats! Oh well, a man has to do what a man has to do . . .
I haven't been so heroic as to remove completely these three
items from my diet, but I have greatly reduced all of them; for example,
instead of having a dozen chocolate donuts, I limit myself to eleven.
Just kidding; I'm really reducing all three; and if I'm having, say,
fried chips, I do not eat ones covered in cheese dust because I don't want
to combine any of the three in a single meal.
I've been doing well on this new diet and have not been getting
those dreaded and familiar pains after lunch and for the remainder of
the day. I pray for full remission; and if I wind up having to cut these three
items completely from my diet, I'll try that, too. I'm not a doctor; I'm just
sharing my experience with you and hope you have the same luck with it as
I have had. Wish me luck in my battle with Crohn's disease, and I'll wish you the same.